Buying your Self on the Internet

Table of Statutes Table of Cases

1. Direct-To-Consumer Genetic Testing and Regulating Disruptive Technology

1. Introduction
2. Aims of This Book
3. Guidance for Readers
4. What Is Personal Genomics or Direct-to-Consumer Genetic Testing?
5. Summary of How DTC Services Operate
6. Bringing Disruptive Technology to the Public
7. Data Deluge
8. Methodology
9. How Should the DTC Industry Be Regulated? The Policy Response to Date
10. Sources of Law Which Might Be Applicable to DTC in the UK and EU
11. What Can Go Wrong?
12. Conclusion

2. The Science behind that Click of the Mouse

1. Introduction
2. The Nature of Genetic Information and Genetic Exceptionalism
3. Recent Advances in Genetic and Genomic Science
4. Conclusion

3. The Rise of Personal Genomics – Overview of the Direct-to-Consumer Genetic Testing Industry

1. Introduction
2. Overview of the DTC Industry
3. Health Tests
4. Ancestry Testing
5. Genetic Relatedness Testing
6. Testing for Athletic Ability
7. Testing for Child Talent and Testing of Children
8. Surreptitious (‘Infidelity’) Testing
9. Match Making Testing
10. Conclusion

4. Privacy, Data Protection, and Security in the Context of Direct-to-Consumer Genetic Testing Services

1. Introduction
2. General Data Protection Regulation (GDPR)
3. The UK’s Data Protection Legislation
4. Privacy Policies and Notices and Website Design
5. US Privacy Law
6. Canadian Genetic Privacy Law
7. Secondary Use of Genetic Databases – the Golden State Killer and Beyond
8. Indigenous Peoples and Data Sovereignty
9. Privacy Best Practices for Consumer Genetics Testing Services (July 2018)
10. Conclusion

5. Clicking Away Rights in DNA: A Review of DTC Contracts

1. Introduction
2. Challenging Unfair Terms in DTC Contracts
3. Conclusion

6. Future Directions for DTC Governance

1. Note for Readers Interested in Purchasing DTC Tests
2. Suggestions for Reform
3. Final Thoughts

Bibliography